We’re thrilled to share some recent milestones and exciting plans as we forge ahead in our quest for treatments and,…
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LOREM IPSUM DOLOR SIT AMET
https://www.youtube.com/watch?v=eNRFDN__sKU As 2023 draws to a close, we are filled with a feeling of excitement. Thanks to your support, this…
We are writing to you with very important news. In collaboration with the United Leukodystrophy Foundation (ULF), we are thrilled…
We’re delighted to share that the first half of 2023 has been productive, and the important work of building partnerships…
The Clinical Consortium for ADLD, a group dedicated to improving care for patients with this rare neurodegenerative disease, has been…
Patient Advocacy Internship: The center engaged a genetic counseling graduate student for an 8-week internship in partnership with the University of…
Over the past year, we’ve made real progress through advancing research and building clinical partnerships to bring us closer to…
The latest from the ADLD Center and launching our first GivingTuesday campaign! Donate to our cause today Your support and…
Pilot Research Grants in partnership with a fellow non-profit org, the Orphan Disease Center at the University of Pennsylvania. The ODC received several full applications with many exciting ideas to advance the science of, and the therapeutic potential for ADLD. We are developing a focused funding opportunity to help meet the needs of our research community. The two $50,000 grants will be awarded to suitable research team(s) in Q2 2023.
Watch our webinar A lot of questions from the community were answered during the “Ask a Clinician” webinar in December…