OUR MISSION
To accelerate research, improve care, and unite the ADLD community in our relentless pursuit of effective treatments and a cure for Autosomal Dominant Leukodystrophy.
OUR WORK
At the ADLD Center, we’re committed to making a positive difference in the lives of those affected by Autosomal Dominant Leukodystrophy. Our work spans four key areas:
Awareness
We strive to increase understanding of ADLD among medical professionals, researchers, and the general public.
Research
Accelerating ADLD research is at the heart of our mission. We conduct ADLD research in partnership with some of the most prestigious organizations and support innovative research initiatives.
Community
Building a strong, supportive ADLD community is crucial to our work. We organize patient and family meetups, host online forums.
Resources
This includes developing educational materials about ADLD management and offering support services to help patients and caregivers navigate the challenges of living with ADLD.
OUR goals
Accelerate Research: To fund and support cutting-edge ADLD research, including our collaborative Patient Registry, aimed at developing effective treatments and ultimately, a cure.
Improve Care: To disseminate the latest ADLD treatment information to physicians, enhancing patient care quality.
Unite the Community: To foster a supportive, informed network of ADLD-affected families actively engaged in mutual support and organizational involvement.
Secure Sustainable Support: To build a committed donor base providing the necessary funds to achieve our vision and mission.
Enhance Resources: To develop and provide comprehensive, accessible resources supporting the ADLD community throughout their journey.