The patient registry is a crucial step in pushing forward various research efforts in finding therapies for ADLD. As a member of the ADLD community, we are thankful for your interest and support. It is vital that we all work together to build a strong and visible community of ADLD patients, families, and caregivers.
This research initiative is a community effort, and we cannot do this without you. The registry is now open to all ADLD patients and to any interested family members of ADLD patients. To join, simply visit our website.
After you join, you will be asked to complete a few short introductory activities.
We will add additional surveys and research opportunities in the next couple of months based on what we learn.
You can also share information about the registry with friends, family, and others who may be interested. Simply forward this email or contact us at registry@adld.center to ask for an enrollment guide.