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Research and Funding

Current Funding Opportunities

We are excited to be working in partnership with the Orphan Disease Center at the University of Pennsylvania to fund up to two 1-year grants of $50,000 each. The ADLD Center will be seeking grant applications for multidisciplinary teams of scientists that aim to further progress our understanding of the disease, the available therapeutic options, and investigating strategies to establish outcome measurements.


Scientific Resources

Publications about clinical diagnosis, management and treatment of ADLD, LMNB1 mutations, and LaminB1 can be found below:

Alturkustani, M., Sharma, M., Hammond, R., & Ang, L. C. (2013). Adult-onset leukodystrophy: review of 3 clinicopathologic phenotypes and a proposed classification. J Neuropathol Exp Neurol, 72(11), 1090-1103. doi:10.1097/NEN.0000000000000008

Asahara, H., Yoshimura, T., Sada, S., Furuya, H., & Kobayashi, T. (1996). [A Japanese family with probably autosomal dominant adult-onset leukodystrophy]. Rinsho Shinkeigaku, 36(8), 968-972. Retrieved from https://www.ncbi.nlm.nih.gov/pubmed/8958750

Bartoletti-Stella, A., Gasparini, L., Giacomini, C., Corrado, P., Terlizzi, R., Giorgio, E., . . . Capellari, S. (2015). Messenger RNA processing is altered in autosomal dominant leukodystrophy. Hum Mol Genet, 24(10), 2746-2756. doi:10.1093/hmg/ddv034

Brussino, A., Vaula, G., Cagnoli, C., Mauro, A., Pradotto, L., Daniele, D., . . . Brusco, A. (2009). A novel family with Lamin B1 duplication associated with adult-onset leucoencephalopathy. J Neurol Neurosurg Psychiatry, 80(2), 237-240. doi:10.1136/jnnp.2008.147330

Brussino, A., Vaula, G., Cagnoli, C., Panza, E., Seri, M., Di Gregorio, E., . . . Brusco, A. (2010). A family with autosomal dominant leukodystrophy linked to 5q23.2-q23.3 without lamin B1 mutations. Eur J Neurol, 17(4), 541-549. doi:10.1111/j.1468-1331.2009.02844.x

Columbaro, M., Mattioli, E., Maraldi, N. M., Ortolani, M., Gasparini, L., D’Apice, M. R., . . . Lattanzi, G. (2013). Oct-1 recruitment to the nuclear envelope in adult-onset autosomal dominant leukodystrophy. Biochim Biophys Acta, 1832(3), 411-420. doi:10.1016/j.bbadis.2012.12.006

Dai, Y., Ma, Y., Li, S., Banerjee, S., Liang, S., Liu, Q., . . . Jin, L. (2017). An LMNB1 Duplication Caused Adult-Onset Autosomal Dominant Leukodystrophy in Chinese Family: Clinical Manifestations, Neuroradiology and Genetic Diagnosis. Front Mol Neurosci, 10, 215. doi:10.3389/fnmol.2017.00215

Di Donato, I., Banchi, S., Federico, A., & Dotti, M. T. (2014). Adult-Onset Genetic Leukoencephalopathies. Focus on the More Recently Defined Forms. Curr Mol Med, 14(8), 944-958. doi:10.2174/1566524014666141010130545

Di Donato, I., Dotti, M. T., & Federico, A. (2014). Update on several/certain adult-onset genetic leukoencephalopathies: clinical signs and molecular confirmation. J Alzheimers Dis, 42 Suppl 3, S27-35. doi:10.3233/JAD-141026

Dos Santos, M. M., Grond-Ginsbach, C., Aksay, S. S., Chen, B., Tchatchou, S., Wolf, N. I., . . . Grau, A. J. (2012). Adult-onset autosomal dominant leukodystrophy due to LMNB1 gene duplication. J Neurol, 259(3), 579-581. doi:10.1007/s00415-011-6225-4

Dreesen, O., Ong, P. F., Chojnowski, A., & Colman, A. (2013). The contrasting roles of lamin B1 in cellular aging and human disease. Nucleus, 4(4), 283-290. doi:10.4161/nucl.25808

Eldridge, R., Anayiotos, C. P., Schlesinger, S., Cowen, D., Bever, C., Patronas, N., & McFarland, H. (1984). Hereditary adult-onset leukodystrophy simulating chronic progressive multiple sclerosis. N Engl J Med, 311(15), 948-953. doi:10.1056/NEJM198410113111504

Ferrera, D., Canale, C., Marotta, R., Mazzaro, N., Gritti, M., Mazzanti, M., . . . Gasparini, L. (2014). Lamin B1 overexpression increases nuclear rigidity in autosomal dominant leukodystrophy fibroblasts. FASEB J, 28(9), 3906-3918. doi:10.1096/fj.13-247635

Finnsson, J., Lubberink, M., Savitcheva, I., Fallmar, D., Melberg, A., Kumlien, E., & Raininko, R. (2019). Glucose metabolism in the brain in LMNB1-related autosomal dominant leukodystrophy. Acta Neurol Scand, 139(2), 135-142. doi:10.1111/ane.13024

Finnsson, J., Sundblom, J., Dahl, N., Melberg, A., & Raininko, R. (2015). LMNB1-related autosomal-dominant leukodystrophy: Clinical and radiological course. Ann Neurol, 78(3), 412-425. doi:10.1002/ana.24452

Giacomini, C., Mahajani, S., Ruffilli, R., Marotta, R., & Gasparini, L. (2016). Lamin B1 protein is required for dendrite development in primary mouse cortical neurons. Mol Biol Cell, 27(1), 35-47. doi:10.1091/mbc.E15-05-0307

Giorgio, E., Lorenzati, M., Rivetti di Val Cervo, P., Brussino, A., Cernigoj, M., Della Sala, E., . . . Brusco, A. (2019). Allele-specific silencing as treatment for gene duplication disorders: proof-of-principle in autosomal dominant leukodystrophy. Brain, 142(7), 1905-1920. doi:10.1093/brain/awz139

Giorgio, E., Rolyan, H., Kropp, L., Chakka, A. B., Yatsenko, S., Di Gregorio, E., . . . Padiath, Q. S. (2013). Analysis of LMNB1 duplications in autosomal dominant leukodystrophy provides insights into duplication mechanisms and allele-specific expression. Hum Mutat, 34(8), 1160-1171. doi:10.1002/humu.22348

Hutchison, C. J. (2014). B-type lamins in health and disease. Semin Cell Dev Biol, 29, 158-163. doi:10.1016/j.semcdb.2013.12.012

Jaklin, C., Heiliger, K., Hempel, M., Sollacher, D., Cohen, M., Makowski, C. C., . . . Oexle, K. (2012). Cryptic del/dup aberration of 60.6 Mb at 5q15-5q23.3 predicting adult-onset leukodystrophy. Eur J Med Genet, 55(10), 568-572. doi:10.1016/j.ejmg.2012.06.010

Koeppen, A. H. (2001). Re.: Clinical, radiological and pathological findings in an autosomal dominant leukodystrophy. J Neurol Sci, 187(1-2), 107, 109. doi:10.1016/s0022-510x(01)00535-4

Labauge, P., Fogli, A., Castelnovo, G., Le Bayon, A., Horzinski, L., Nicoli, F., . . . Rodriguez, D. (2005). Dominant form of vanishing white matter-like leukoencephalopathy. Ann Neurol, 58(4), 634-639. doi:10.1002/ana.20573

Leombruni, S., Vaula, G., Coletti Moja, M., Bergui, M., Bergamini, L., & Quattrocolo, G. (1998). Neurophysiological study in an Italian family with autosomal dominant late-onset leukodystrophy. Electromyogr Clin Neurophysiol, 38(3), 131-135. Retrieved from https://www.ncbi.nlm.nih.gov/pubmed/9637937

Lin, S. T., & Fu, Y. H. (2009). miR-23 regulation of lamin B1 is crucial for oligodendrocyte development and myelination. Dis Model Mech, 2(3-4), 178-188. doi:10.1242/dmm.001065

Lo Martire, V., Alvente, S., Bastianini, S., Berteotti, C., Bombardi, C., Calandra-Buonaura, G., . . . Silvani, A. (2018). Mice overexpressing lamin B1 in oligodendrocytes recapitulate the age-dependent motor signs, but not the early autonomic cardiovascular dysfunction of autosomal-dominant leukodystrophy (ADLD). Exp Neurol, 301(Pt A), 1-12. doi:10.1016/j.expneurol.2017.12.006

Marklund, L., Melin, M., Melberg, A., Giedraitis, V., & Dahl, N. (2006). Adult-onset autosomal dominant leukodystrophy with autonomic symptoms restricted to 1.5 Mbp on chromosome 5q23. Am J Med Genet B Neuropsychiatr Genet, 141B(6), 608-614. doi:10.1002/ajmg.b.30342

Meijer, I. A., Simoes-Lopes, A. A., Laurent, S., Katz, T., St-Onge, J., Verlaan, D. J., . . . Rouleau, G. A. (2008). A novel duplication confirms the involvement of 5q23.2 in autosomal dominant leukodystrophy. Arch Neurol, 65(11), 1496-1501. doi:10.1001/archneur.65.11.1496

Melberg, A., Hallberg, L., Kalimo, H., & Raininko, R. (2006). MR characteristics and neuropathology in adult-onset autosomal dominant leukodystrophy with autonomic symptoms. AJNR Am J Neuroradiol, 27(4), 904-911. Retrieved from https://www.ncbi.nlm.nih.gov/pubmed/16611789

Mezaki, N., Miura, T., Ogaki, K., Eriguchi, M., Mizuno, Y., Komatsu, K., . . . Ikeuchi, T. (2018). Duplication and deletion upstream of LMNB1 in autosomal dominant adult-onset leukodystrophy. Neurol Genet, 4(6), e292. doi:10.1212/NXG.0000000000000292

Nahhas, N., Sabet Rasekh, P., Vanderver, A., & Padiath, Q. (2016). Autosomal Dominant Leukodystrophy with Autonomic Disease. In M. P. Adam, H. H. Ardinger, R. A. Pagon, S. E. Wallace, L. J. H. Bean, K. Stephens, & A. Amemiya (Eds.), GeneReviews((R)). Seattle (WA).

Nmezi, B., Giorgio, E., Raininko, R., Lehman, A., Spielmann, M., Koenig, M. K., . . . Padiath, Q. S. (2019). Genomic deletions upstream of lamin B1 lead to atypical autosomal dominant leukodystrophy. Neurol Genet, 5(1), e305. doi:10.1212/NXG.0000000000000305

Padiath, Q. S. (2016). Lamin B1 mediated demyelination: Linking Lamins, Lipids and Leukodystrophies. Nucleus, 7(6), 547-553. doi:10.1080/19491034.2016.1260799

Padiath, Q. S. (2019). Autosomal Dominant Leukodystrophy: A Disease of the Nuclear Lamina. Front Cell Dev Biol, 7, 41. doi:10.3389/fcell.2019.00041

Padiath, Q. S., & Fu, Y. H. (2010). Autosomal dominant leukodystrophy caused by lamin B1 duplications a clinical and molecular case study of altered nuclear function and disease. Methods Cell Biol, 98, 337-357. doi:10.1016/S0091-679X(10)98014-X

Padiath, Q. S., Saigoh, K., Schiffmann, R., Asahara, H., Yamada, T., Koeppen, A., . . . Fu, Y. H. (2006). Lamin B1 duplications cause autosomal dominant leukodystrophy. Nat Genet, 38(10), 1114-1123. doi:10.1038/ng1872

Pedroso, J. L., Munford, V., Bastos, A. U., Castro, L. P., Marussi, V. H. R., Silva, G. S., . . . Barsottini, O. G. (2017). LMNB1 mutation causes cerebellar involvement and a genome instability defect. J Neurol Sci, 379, 249-252. doi:10.1016/j.jns.2017.06.027

Potic, A., Pavlovic, A. M., Uziel, G., Kozic, D., Ostojic, J., Rovelli, A., . . . Taroni, F. (2013). Adult-onset autosomal dominant leukodystrophy without early autonomic dysfunctions linked to lamin B1 duplication: a phenotypic variant. J Neurol, 260(8), 2124-2129. doi:10.1007/s00415-013-6958-3

Ptacek, L. J., Fu, Y. H., & Koeppen, A. (2006). The dominant form of vanishing white matter-like leukoencephalopathy represents autosomal dominant leukodystrophy. Ann Neurol, 59(2), 434. doi:10.1002/ana.20773

Robinson, A., Partridge, D., Malhas, A., De Castro, S. C., Gustavsson, P., Thompson, D. N., . . . Greene, N. D. (2013). Is LMNB1 a susceptibility gene for neural tube defects in humans? Birth Defects Res A Clin Mol Teratol, 97(6), 398-402. doi:10.1002/bdra.23141

Rolyan, H., Tyurina, Y. Y., Hernandez, M., Amoscato, A. A., Sparvero, L. J., Nmezi, B. C., . . . Padiath, Q. S. (2015). Defects of Lipid Synthesis Are Linked to the Age-Dependent Demyelination Caused by Lamin B1 Overexpression. J Neurosci, 35(34), 12002-12017. doi:10.1523/JNEUROSCI.1668-15.2015

Schuster, J., Sundblom, J., Thuresson, A. C., Hassin-Baer, S., Klopstock, T., Dichgans, M., . . . Dahl, N. (2011). Genomic duplications mediate overexpression of lamin B1 in adult-onset autosomal dominant leukodystrophy (ADLD) with autonomic symptoms. Neurogenetics, 12(1), 65-72. doi:10.1007/s10048-010-0269-y

Tagawa, A., Ono, S., Inoue, K., Hosoi, N., Kaneda, K., Suzuki, M., . . . Shimizu, N. (2001). A new familial adult-onset leukodystrophy manifesting as cerebellar ataxia and dementia. J Neurol Sci, 183(1), 47-55. doi:10.1016/s0022-510x(00)00472-x

Zanigni, S., Terlizzi, R., Tonon, C., Testa, C., Manners, D. N., Capellari, S., . . . Lodi, R. (2015). Brain magnetic resonance metabolic and microstructural changes in adult-onset autosomal dominant leukodystrophy. Brain Res Bull, 117, 24-31. doi:10.1016/j.brainresbull.2015.07.002

Zhang, Y., Li, J., Bai, R., Wang, J., Peng, T., Chen, L., . . . Lu, H. (2019). LMNB1-Related Adult-Onset Autosomal Dominant Leukodystrophy Presenting as Movement Disorder: A Case Report and Review of the Literature. Front Neurosci, 13, 1030. doi:10.3389/fnins.2019.01030