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YOU ARE  NOT ALONE.
Together we will turn the corner on ADLD.
Although ADLD is very rare, there are estimated to be thousands of ADLD patients worldwide.  We created the ADLD Center in part so that we can all unite and fight together! Collectively, we will be able to catalyze change by sharing our knowledge and experiences, as well as by advocating for research and therapies.
WHAT WE DO
Towards a cure for ADLD

The ADLD Center is focused on raising awareness about Autosomal Dominant Leukodystrophy (ADLD) and developing a network of clinicians, researchers, patients and their caregivers/advocates in order to raise funds as we move forward towards finding a cure.

Research

We facilitate basic and translational research in order to understand ADLD better and find effective treatments

Clinical

We are creating a network of physicians and health professionals who have relevant expertise and can provide effective care

Patients

We aim to grow as a community and be an information resource for patients and their families around all things ADLD

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Support us

Give today to support our work towards making a difference in the lives of ADLD patients and their caregivers.
ADLD Patient
ADLD Handbook

Download the ADLD HANDBOOK

Explore our new ADLD Handbook - your complete guide to understanding, managing, and finding support for ADLD.