Pilot Research Grants in partnership with a fellow non-profit org, the Orphan Disease Center at the University of Pennsylvania. The ODC received several full applications with many exciting ideas to advance the science of, and the therapeutic potential for ADLD. We are developing a focused funding opportunity to help meet the needs of our research community. The two $50,000 grants will be awarded to suitable research team(s) in Q2 2023.
Officially launched The ADLD Research Hub! We continue our efforts to build a comprehensive ADLD Patient Registry and engage with patients and caregivers to help us understand and serve the needs of the community, in addition to facilitating research.