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New Heights in 2023: ADLD Center Reveals Ambitious Roadmap

Over the past year, we’ve made real progress through advancing research and building clinical partnerships to bring us closer to a treatment for ADLD. To keep this momentum going, we need your help.


The video below presents an overview of 2022 and lays out our goals and spending plan for 2023 and 2024. Please watch it to learn how we plan to push forward on several fronts and join us in building a better future for patients and families living with ADLD.

The ADLD community has made remarkable strides in the past year through increased collaboration and outreach across the globe. Researchers from the U.S., China, India, South America, and Europe who had previously worked solo are now connecting to share knowledge and accelerate studies.

Patient advocates have also expanded their reach, identifying new ADLD cases and providing support in countries where this rare disease was virtually unknown. As a result, we stand at a pivotal moment in ADLD research. The progress made in the next 18 months could determine whether effective treatments emerge within the next few years.

But this urgent work requires sufficient funding. The ADLD Foundation has set an ambitious year-end fundraising goal and is currently $90,000 short with the calendar nearing July. That’s why now is the time to take advantage of a $250,000 matching grant that will double your donation dollars.

Whether you can give $50, $500, or $5,000, your contribution will significantly help narrow the funding gap. Every dollar donated will support critical initiatives like genetic studies, animal model development, biomarker research, and clinical trials. With your help, we can maintain the momentum in the fight against ADLD.

Click on this link to make a tax-deductible gift today. Together, we can turn the corner on this devastating disease.