Scroll Top
ABOUT US | OUR Mission

Our mission is to support research into various aspects of Autosomal Dominant Leukodystrophy.

We aim to focus on facilitating research on pathology and therapy, while helping create a support network for patients, caregivers, and families to disseminate relevant information.

OUR WORK

Awareness

Raising awareness about ADLD among physicians, scientists, and the general public

research

Supporting relevant research through a grant giving program

community

Providing a caring and educational community for patients, caregivers, and families

Resource

Serving as a unique information resource for all things ADLD

OUR goals

To ensure that all diagnosed ADLD patients actively participate in the ADLD Patient Registry. We have created this in collaboration with our clinical partners.

To encourage, support, and fund research to advance understanding of ADLD, and ultimately to develop a cure for ADLD.

To communicate information about effective ADLD treatments to physicians.

To grow and strengthen a caring and informed community of ADLD-affected families that are actively involved in supporting each other and our organization.

To build a base of committed contributors who will provide the funds we need to achieve our vision.

SUPPORT OUR CAUSE

Subscribe for news and updates.