The ADLD Foundation’s “Ask an ADLD Clinician” webinar held on December 16, 2022 provided patients and caregivers an invaluable opportunity…
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The ADLD Center is providing an invaluable opportunity for patients, caregivers, and interested individuals to engage with top researchers in…
The ADLD Center is hosting an exclusive webinar with ADLD research pioneer Dr. Quasar Padiath. Dr. Padiath currently serves as…
Officially launched The ADLD Research Hub! We continue our efforts to build a comprehensive ADLD Patient Registry and engage with patients and caregivers to help us understand and serve the needs of the community, in addition to facilitating research.
This month has been momentous. On August 25, 2022 we launched the ADLD Research Hub. Our research team led a…
We’re excited to share the first insights from the ADLD Research Hub! Thank you to everyone who has participated so…
The ADLD community has accumulated wisdom over time on how to navigate daily activities and find comfort while living with…
ADLD is caused by an extra copy of the LMNB1 gene, which leads to overproduction of the Lamin B1 protein…
The ADLD Center, dedicated to supporting those impacted by autosomal dominant adult-onset demyelinating leukodystrophy (ADLD), recently received 501(c)(3) approval from…
While autosomal dominant leukodystrophy (ADLD) remains a rare, difficult-to-treat genetic disorder, researchers across the globe are collaborating to better understand…