The Clinical Consortium for ADLD, a group dedicated to improving care for patients with this rare neurodegenerative disease, has been…
Patient Advocacy Internship: The center engaged a genetic counseling graduate student for an 8-week internship in partnership with the University of…
Over the past year, we’ve made real progress through advancing research and building clinical partnerships to bring us closer to…
The latest from the ADLD Center and launching our first GivingTuesday campaign! Donate to our cause today Your support and…
Pilot Research Grants in partnership with a fellow non-profit org, the Orphan Disease Center at the University of Pennsylvania. The ODC received several full applications with many exciting ideas to advance the science of, and the therapeutic potential for ADLD. We are developing a focused funding opportunity to help meet the needs of our research community. The two $50,000 grants will be awarded to suitable research team(s) in Q2 2023.
Watch our webinar A lot of questions from the community were answered during the “Ask a Clinician” webinar in December…
The ADLD Foundation’s “Ask an ADLD Clinician” webinar held on December 16, 2022 provided patients and caregivers an invaluable opportunity…
The ADLD Center is providing an invaluable opportunity for patients, caregivers, and interested individuals to engage with top researchers in…
The ADLD Center is hosting an exclusive webinar with ADLD research pioneer Dr. Quasar Padiath. Dr. Padiath currently serves as…
Officially launched The ADLD Research Hub! We continue our efforts to build a comprehensive ADLD Patient Registry and engage with patients and caregivers to help us understand and serve the needs of the community, in addition to facilitating research.
This month has been momentous. On August 25, 2022 we launched the ADLD Research Hub. Our research team led a…
We’re excited to share the first insights from the ADLD Research Hub! Thank you to everyone who has participated so…